| Description |
1 online resource (1 audio file (8hr., 14 min.)) : digital. |
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digital digital recording rda |
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data file rda |
| Access |
Digital content provided by hoopla. |
| Cast |
Read by Ellen Archer, Matt Gumley. |
| Summary |
A moving memoir from the mother of a child with Treacher Collins Syndrome, with a foreword by R.J. Palacio, author of Wonder For Magda Newman, normal was a goal-she wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments of childhood that are often taken for granted. But Nathaniel's severe Treacher Collins syndrome-a craniofacial condition-meant that other concerns came first. Could he eat without the aid of a gastrointestinal tube? Could he hear? Would he ever be able to breathe effortlessly? In this moving memoir, Newman, with the help of her son, tells the story of raising Nathaniel, from the shock she and her husband faced when he was born, to the inspiration of Nathaniel's own strength and quirky humor. All this while also facing both non-Hodgkins and Hodgkins lymphoma diagnoses of her own. This uplifting story of a family tackling complex and terrifying circumstances with love and resilience is a true testament to Magda and her family, and to families everywhere who quietly but courageously persist. |
| System Details |
Mode of access: World Wide Web. |
| Subject |
Newman, Nathaniel -- Health.
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Newman, Magdalena.
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Facial bones -- Abnormalities -- Biography.
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Genetic disorders -- Biography.
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Dysostosis -- Biography.
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Mothers and sons.
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Families -- Washington (State) -- Seattle.
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Seattle (Wash.) -- Biography.
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| Added Author |
Liftin, Hilary, author.
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Palacio, R. J., writer of foreword.
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hoopla digital.
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| ISBN |
9780358172260 (sound recording : hoopla Audio Book) |
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0358172268 (sound recording : hoopla Audio Book) |
| Music No. |
MWT14796119 |
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