LEADER 00000pam 2200421 i 4500 003 DLC 005 20190909110820.0 008 190311s2019 nyua 000 0aeng 010 2019011796 020 9781524799618 (hardback) 040 DLC|beng|erda|cDLC|dNjBwBT|dNvReBT|dUtOrBLW 042 pcc 043 n-us--- 092 BIO|bFAJGENBA 100 1 Fajgenbaum, David C.,|eauthor. 245 10 Chasing my cure :|ba doctor's race to turn hope into action : a memoir /|cDavid Fajgenbaum, M.D. 250 First edition. 264 1 New York :|bBallantine Books,|c[2019] 300 241 pages :|bcolor illustrations ;|c22 cm 336 text|btxt|2rdacontent 337 unmediated|bn|2rdamedia 338 volume|bnc|2rdacarrier 520 "The inspiring memoir of a young doctor and former college athlete who became a champion for people suffering from rare, under-researched diseases--all while battling his own. A former Georgetown quarterback nicknamed "The Beast, " David Fajgenbaum was also a force in medical school, where he was known for his unmatched mental stamina. But things changed dramatically when he began suffering from inexplicable fatigue. In a matter of weeks, his organs were failing and he was read his last rites. Doctors were baffled over a condition they had yet to even diagnose; floating in and out of consciousness, Fajgenbaum prayed for the equivalent of game day overtime: a second chance. Miraculously, Fajgenbaum survived, but only to endure repeated near-death relapses from what would eventually be identified as a form of Castleman disease--an extremely deadly and rare condition that acts like a cross between cancer and an autoimmune disease. When he relapsed on the only drug in development and realized that the medical community was unlikely to make progress in time to save his life, Fajgenbaum turned his desperate hope for a cure into concrete action: between hospitalizations he studied his own charts and tested his own blood samples, looking for clues that could unlock a new treatment. With the help of family, friends and mentors, he also reached out to other Castleman disease patients and physicians, and eventually came up with an ambitious plan to crowdsource the most promising research questions and recruit world- class researchers to tackle them; instead of waiting for the scientific stars to align, he proposed to align them himself. More than five years later and now married to his college sweetheart, his hard work has paid off: a treatment that he identified has induced a tentative remission and his novel approach to collaborative scientific inquiry has become a blueprint for advancing rare disease research. His incredible story demonstrates the potency of hope, and what can happen when forces of determination, love, family, faith and serendipity collide"--|cProvided by publisher. 600 10 Fajgenbaum, David C.|xHealth. 650 0 Lymph nodes|xCancer|xPatients|zUnited States|vBiography. 650 0 Physicians|xDiseases|zUnited States. 650 0 Physicians|zUnited States|vBiography.
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